Sometimes when you are dealing with a serious problem you watch the world wandering happily by and want to either a) cry b) drown your sorrows c) say some rude words or d) all of the above, because it seems you are the only one in this sorry situation. Well, you are not. Although there will be ups and downs you will come out the other side.
In 2006 Arjunuday was born as a sibling to a healthy sister Lavanya . Tulika and Rahul Verma planned second baby to give a company to their daughter. It was a full term pregnancy with out any complication.
The minute Arjunuday was born, the doctors found multiple congenital defects that shattered the dreams of the parents. They were devastated and could not understand why they were being punished in this way. They had no choice but to accept the inevitable reality and decided to give him the best possible medical care.
Perhaps this is a penalty he has to pay for being born in a third world
country. Yes, when Arjunuday was only one hour old he had a price tag on his life. If parents paid the price, they can have him, if not he has to go back to where he came from.
Mummy and Papa went through phases of self-pity, denial, mutual accusations and anger towards the society, which was indifferent to their problems.
After 7 correction surgeries, 9 hospital stays and over a million expenses , Arjunuday is still under going through following follow-ups
AIIMS for his Renal Functions , Urine Reflux and Blood Pressure Monitoring
LNJP Hospital for Anorectal Malformation , Continuous Severe Diarrhea , Tracheo-esophageal fistula and Anal Mucosal Prolapse
Baijerbai Wadia Hospital for Children, Mumbai for Fecal Incontinence
Dr. Bela Sethi’s Physical Therapy Clinic, NDSE , New Delhi for Anal Re-education Therapy daily for continues 3 months. (Physiotherapy for fecal incontinence secondary to anorectal malformation)
As a suffering parents of small suffering baby , it was scary to think about hundred of parents who can not afford treatment or lack of awareness about the subject. Tulika and Rahul realised that most professionals in education, press, medicine and social work fields were largely unaware of anorectal malformations and associated congenital defects.
They decided to create Uday Foundation that would bring awareness of congenital defects to the media, to governments, to all professionals who needed to know about the disabilities of those they were dealing with on a daily basis, and ultimately, the general public.
"Uday Foundation for Congenital Defects and Rare Blood Groups" is non profit, non commercial and social service organistation, registered as a trust (Reg.No.2802/B.No.4/Vol.No.3179/P.No. 36-43/260508), Income Tax: Pan No. : AAATU3130H ( 80G awaited ) in New Delhi , India.
