Little Mukund is eligible to vote as per constitution of India & he is also keen on completing his tenth board exam next year, but for the fact that ten years after his operation for brain tumor in 1998, his family is still struggling to make him a normal boy of 18 years.
Mukund is doing routine follow-ups at AIIMS Endocrinology OPD for multiple hormone deficiencies including growth hormone deficiency.
Now, the good news for Mukund is that treatment is possible but the cost of growth hormone therapy is approximately Rs. 3 Lacs per year for next 2-3 years. (as per documents provided by AIIMS to this boy).
Many conditions which interfere with children's growth are treatable. Insulin, growth hormone, thyroid hormone, and now insulin-like growth factor are medications which are as close to nature as possible. Children with a wide range of growth deficiencies have had wonderful results thanks to growth hormone and other treatments.
GH is usually administered as a daily injection under the skin. Because adults tend to have more side effects than children, their treatment often begins at a low dose and then is raised gradually.
AIIMS also mentioned in the certificate that in absence of this therapy , he is likely to suffer from serious physical and social consequences of short stature and this treatment is essential for him.
With average monthly income of Rs. 4000/- , Parents of Mukund are not is position to afford his treatment.
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Like many sick Indians, Mukund is both symptom and cause. His lack of proper treatment is reason enough for national shame but his ill health hurts the country in turn, not only forcing the frail-looking boy to miss school for few months while he searches government departments in Bihar for some help, but dragging his poor family into debt when they should be benefiting from India's economic boom.
Indian boy trapped in body of an eight-year-old child after brain tumour : The Daily Telegraph, London
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About The Uday Foundation
The Uday Foundation is a nonprofit organization providing support services to the families of children afflicted with congenital defects, critical disorders, syndromes, and diseases that affect their health condition, education & growth. Advocacy on public health policy, awareness and implementation of various health related projects for common citizen is also key result area of our work. Please read more about us.
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