Advocacy is integral to all programs at Uday Foundation for Congenital Defects and Rare Blood Groups. Uday Foundation continues to challenge assumptions around congenital and health issues and works to influence the government’s health policy.

Recent RTIs Filed by Uday Foundation

• Information seeking status of Human Organ Transplant Law
• Status of Rare Blood Group Donors at AIIMS
• NEW : Fresh RTI on Clinical Trials on Human Babies in AIIMS : 22/08/2008
• RTI : Clinical Trials on Human Babies at Pediatrics Dptt., AIIMS
  Reply of AIIMS : Page 1, Page 2 , Page 3

Original Draft  of Petition filed at National Human Rights Commission reg. Clinical Trials on Human Babies by Department of Pediatrics , AIIMS

Please Check out our Speak-Out Program

The broad areas of our current focus and the corresponding projects in each category are outlined here.

RareBloodGroups.Org

Arranging rare blood group is always a tough task as awareness on these ailments is still low and usually getting started on the search for rare blood groups draws a blank with most people.

RareBloodGroups.Org : India’s 1st online registry of rare blood type donors including AB Negative, A Negative, B Negative, O Negative and Bombay Blood Type . learn more.

 

Anorectal Malformation and Associated Congenital Defects

This project is supported by World Anorectal Malformation Association with common goal to support children with anorectal malformation and associated birth defect. Learn More.

 

Intersex / DSD ( Disorders of Sex Development)

Uday Foundation is devoted to systemic change to end shame, secrecy, and unwanted genital surgeries for children born with an anatomy that someone decided is not standard for male or female. In India Intersexuality is primarily a problem of stigma and trauma, not gender. Learn More

 

Congenital Heart Defects

3-8 children out of every thousand live births are born with heart disorders and two-thirds of them are liable to die before they cross their first birthday. Key Result Area of this project is to to give underprivileged children in India born with heart diseases appropriate treatment. Uday Foundation aims to assist early diagnosis and availability of monetary assistance for diagnostic purposes and surgical interventions. Learn More